We surveyed… Here’s what we Found

In the summer leading up to the kickoff of CF Nutritional Foundation, we surveyed and got responses from almost 200 CF care team members and over 400 individuals or caretakers of someone with CF. We did this because we wanted to understand where we can help, where the struggles are, and where it gets real. We wanted it to come straight from the source: those medically managing the disease and those living it.

We showcased the release of this information at NACFC 2026 in Atlanta, and we are now showing it here. Below is a slideshow of what we found. This is our why. It’s needed- now.